Family Education
Parent and guardian education on the topics that come up most often in PPEC care.
These guides come from the American Academy of Pediatrics and Nationwide Children’s Hospital, and are written for families rather than clinicians. They explain the general principles.
They do not replace your child’s own care plan. Equipment, settings, doses and emergency steps are specific to your child, and your nurse or therapist will teach you hands-on. If anything here differs from what our team or your child’s physician has told you, follow your care plan and call us at 407-403-5822.
For a life-threatening emergency, call 911.
Breathing and airway
- Tracheostomy: what it is and when it is needed
- Tracheostomy care: preventing trach infections
- Tracheostomy care: protecting a child with a trach tube
- Packing a travel bag for trach care
- Aerosol and nebulizer therapy
- Oxygen therapy at home
- Apnea: what it is
Monitors and equipment
- Pulse oximetry
- Monitors, ventilators and other equipment explained — covers cardiorespiratory and apnea monitors, ventilators, and oxygen equipment
- Comprehensive trach and ventilator care
Feeding and nutrition
- Getting a feeding tube
- Nasogastric tubes: placement and feeding
- Storing and preparing expressed breast milk
Measuring abdominal girth is taught hands-on by your child’s nurse, since the landmarks and what counts as a concerning change depend on your child. Ask us to walk you through it.
Medications and seizures
Infection control and skin
Safety at home
- Preventing falls in children
- Home safety for infants and toddlers
- Patient safety in a health care setting
Family-centered care and reporting
- What is patient- and family-centered care?
- Reporting suspected child abuse in Florida — the Florida Abuse Hotline is 1-800-962-2873, staffed 24 hours a day